Natural Remedies For Tamoxifen Withdrawal Side Effects
If you are in the process of weaning yourself off of tamoxifen (and there are many reasons why you might want to do so) and need help with the resulting withdrawal side effects, this article shares some tried and true natural remedies to help you out.
The side effects of tamoxifen can be heinous. There are many reasons for these side effects but the major one is that while tamoxifen initially acts as an estrogen-blocker, over time it begins to have estrogen-like activities. When a person has been on tamoxifen for a lengthy period (and that time period varies between people) they can begin to metabolize the drug as they would estrogen, so withdrawing from it can bring on quite a few menopausal symptoms.
Dr Scott M Sedlacek, an oncologist with Colorado Breast Specialists in Denver stated back in 1998 that when a woman stops taking the drug, she can experience estrogen withdrawal. Dr Selacek stated “Perhaps the longer a woman takes tamoxifen, the more likely it will be metabolized as an estrogen and therefore stimulate some of these cancers to recur.”
And that is just what we are finding – the very drug that is meant to protect us from breast cancer recurrence CAN also cause it. I can’t tell you how many women I have personally spoken with who have told me that they took tamoxifen for the recommended five years, only to have breast cancer come back later.
Tamoxifen Is Toxic To The Body
Tamoxifen is toxic to the body, especially to the liver. Even the US Government website http://livertox.nih.gov advises “Long term tamoxifen therapy has been associated with development of fatty liver, steatohepatitis, cirrhosis, and rare instances of clinically apparent acute liver injury.” 1
California has a law called Proposition 65 that requires the state to publish and maintain a list of known carcinogens. In May 1995, California’s Carcinogen Identification Committee voted unanimously to add tamoxifen to that list, and in 1996 the World Health Organization designated tamoxifen a human carcinogen.
As you can see, there is ample reason to stop taking it.
To Wean Yourself Off Tamoxifen
There is no need to taper off the use of Tamoxifen, you can just stop taking it. However, some women report that they fared better when tapering the use of it, that tapering off helped to lessen the side effects. To do this:
1. Rather than taking your usual daily dose, take a dose every other day and do this for two weeks. For instance, take it on Monday, Wednesday, Friday, Sunday the first week and Tuesday, Thursday, Saturday the next week.
2. Then take a dose every third day for one to two weeks. For instance, if the last dose was on a Saturday, take the next dose on Tuesday and Friday and the following week Sunday and Wednesday. At this point, you can stop altogether.
Natural Remedies To Help With Tamoxifen Withdrawal Side Effects
You may experience some side effects from withdrawal of tamoxifen, depending upon how long you have been taking it. Woman speak to me of depression, terrible hot flashes, joint pains, body aches, lethargy, feeling like they have the flu, just an all-over-not-feeling-so-great experience. These side effects do not occur with everyone, but just be aware that they can happen, it’s not out of the ordinary.
For Depressed Mood or Mood Swings:
Food: Ensure you are eating well and including plenty of fresh organic vegetables and organic protein in your diet. Protein is especially important because it is necessary for good hormone levels, it has a hormone balancing effect. Also include legumes, nuts, seeds, roasted soy nuts, freshly ground flaxseed and other omega-3 fats for good brain health and neural connections, raw cruciferous vegetables, lukewarm chamomile tea (not too hot as that can usher in a hot flash!)
Exercise: Also helps to elevate the mood. Whatever you like to do for exercise, get up and do it (even though you may not feel like it – it really does help lift the mood.)
Essential Oils: Basil, frankincense, lemon, a blend called Clarity – diffuse them in the room where you are sitting, massage them into the sides of your neck (dilute first if your skin is sensitive), rub them onto the bottoms of your feet before you go to bed.
Supplements: B vitamins assist a proper functioning nervous system, St John’s Wort, Transfer Factors (strengthening the immune system is known to help reduce depression), Panax Ginseng
Massage therapy: Research indicates massage therapy is excellent for depression, and being a massage therapist I can highly recommend it. I see a marked change in my clients that have depression after receiving a massage. You can’t beat a pair of highly trained hands for nurture-ability and easing your burdens.
Meditation: Helps to calm and balance the nervous system in ways we haven’t even learned yet. Try my guided meditation.
For Hot Flashes:
Food: Eating well is crucial for healthy hormonal balance. The same list of foods as those mentioned for Depressed Mood or Mood Swings can help with hot flashes as well. Also 1 tbsp of Bragg’s Organic Apple Cider Vinegar has been used successfully by some to help with hot flashes. Avoid alcohol, caffeine, white flour, hot drinks and sugar as they are all known to increase incidence of hot flashes. You can drink herbal tea, just let it cool down a bit first. Cruciferous vegetables are particularly helpful – broccoli, kale and cabbage contain indole-3-carbinol which naturally helps to balance estrogen levels.
Exercise: Recent studies indicate exercise does not really help hot flashes, but I beg to disagree, they obviously didn’t use yoga in their studies. I found yoga to be extremely beneficial because it helps on so many levels to calm the nervous system, it plays a part in hormonal balancing, yoga is an amazing resource.
Essential Oils: Essential oils can have a positive effect on the endocrine system by stimulating particular neurotransmitters that help to relieve hot flashes. Clary sage, peppermint, spearmint, lavender and thyme all have a positive effect on hot flashes. If you are in the midst of a hot flash, a single drop of peppermint on the back of your neck will soon have you feeling much better.
Supplements: Omega-3 fats, black cohosh, vitex or chasteberry, American ginseng, maca – all appear to alleviate the frequency and incidence of hot flashes.
Meditation: Helps to calm and balance the nervous system, even 5-10 minutes of meditation can be very beneficial for hot flashes.
Acupuncture: Studies indicate that acupuncture does indeed help with frequency and severity of hot flashes and my clients who have tried it confirm this. 2
For Joint Pains and Body Aches:
Food: Eating lots of fresh produce definitely helps with joint pains and body aches. Please avoid food known to be inflammatory such as caffeine, white flour and sugars. Fresh ginger and turmeric (curcumin) are extremely good for joint pain, as are freshly ground flaxseed and other omega-3 fats.
Essential Oils: Can be very helpful for joint pain and body aches. My favorites are wintergreen, peppermint, ginger, and a blend called Deep Relief. Rub into affected area.
Supplements: Glucosamine sulphate, omega-3 fats, MSM, ginger, turmeric
Hot Epsom Salt Baths: Use 1 cup of Epsom salts in bathtub, soak for 20 minutes (careful, not too hot as this will exacerbate hot flashes). The magnesium is a wonderful pain reliever and helps draw toxins out of the body.
Arnica Montana ointment: Very helpful for joint pain.
For Fatigue:
Food: The same list of foods as those mentioned for Depressed Mood or Mood Swings can help with fatigue as well. Especially good quality protein (organic), legumes, vegetables (especially cruciferous), spinach and kale (high in magnesium), avocados, bananas. Drink plenty of filtered water too because dehydration can cause fatigue.
Sleep: If you are feeling especially fatigued, don’t try to fight through it. Nurture yourself and get to bed early. Rise later if you can, take naps, and know that this won’t last forever.
Supplements: B complex vitamins, Transfer Factors, Siberian ginseng, Coenzyme Q10.
Massage therapy: A healing massage session can definitely help with fatigue, it helps to unblock your energy channels.
Bone Density Problems After Withdrawal of Tamoxifen
Estrogen is necessary for good bone health, our bones rely upon it. When taking tamoxifen, premenopausal women are at a higher risk for osteoporosis, and while postmenopausal women have been told that tamoxifen strengthens bone and reduces the risk of osteoporosis, its other side effects make that one particular benefit not worth risking, in my opinion.
According to Professor David S Goodsell, tamoxifen is “serendipitously specific. It is chemically very similar to estrogen, and binds in the same site on the estrogen receptor as the normal hormone. Tamoxifen is not a typical inhibitor, blocking action completely. It is found to have a range of effects, sometimes blocking the action of the receptor, but other times actually activating it…” Professor Goodsell goes on to state that tamoxifen “appears to act like estrogen in bone cells, actually providing the proper signals for bone maintenance.” 3
Maybe so, but still not worth the risk, there are many other, less toxic ways of building good bones and they don’t have the toxicity of this drug.
When withdrawing from tamoxifen, it is important to find out what state your bones are in. Research indicates that withdrawal from tamoxifen does put women at a higher risk of osteoporosis. 4
To help you find out which tests are the best ones to monitor your bone health, go to www.betterbones.com, run by Dr Susan E Brown, a bone specialist and nutritionist. She has a very good article discussing which bone assessment techniques she feels are most advantageous: Bone Density Tests Are Not Enough. Highly recommended reading.
Final Note:
If you have decided you wish to discontinue the use of tamoxifen, first of all I would suggest you discuss it with your oncologist or primary care physician. You should always do this. Some will be supportive, others may not be, so just be aware of that. This is your body, however, and your quality of life and you have every right to do what you feel is right for you.
References:
1. http://livertox.nih.gov/Tamoxifen.htm
2. The effect of acupuncture on postmenopausal symptoms and reproductive hormones: a sham controlled clinical trial – http://aim.bmj.com/content/29/1/27.abstract
3. The Molecular Perspective: Tamoxifen and the Estrogen Receptor – http://theoncologist.alphamedpress.org/content/7/2/163.full
4. Prevention of Bone Loss After Withdrawal Of Tamoxifen – http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3140137/
xxx FOR HELENA xxx
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Thank you for a brilliant article with some great advice. However I found something alarming! It stated that many woman take tamoxifen for 5 years only to have it return once they stop. I have been told to take it for ten years , I assume because of this.
I have chosen not to take it at all but living with this decision is hard.
Is the article saying that Tamoxifen works? If when you stop it reappears. Do we live with its toxic effects just so that we keep the cancer at bay and hope that our liver and bones cope with the onslaught?
Please don’t take this as criticism as there really is some great advice . Just feeling a little confused and lacking confidence on my own decision making!! Xx
Hi Nicola,
To answer your questions:
1. Some women are now being told to take tamoxifen for ten years, that is true. Keep in mind that the drug companies making it are alarmed that people are opting out of taking it and their profits are slumping. So of course they would do research indicating taking it for longer has a benefit for women.
2. You have made the right decision. Stick by it.
3. Tamoxifen appears to work for women initially but if you will read the part where I say I have met plenty of women who took it for the recommended period of time, only to be suffering recurrences later. Also, it is listed as a human carcinogen by WHO and the state of California (just to name a few). This drug is toxic to the liver.
4. There are much better ways to combat breast cancer than this toxic drug. Let me know if you need help with this.
Warmest regards,
Marnie
I just started weaning off of Tamoxifen after a year of taking it. I would love to hear the alternatives. I am looking at seed cycling. Thank you for your great articles – they are so helpful!
It’s nice to hear that some are opting out of taking Tamoxifen. I’ve been taking it for 3 years and I’ve been advised to take it for 10. I have wanted to stop taking it basically from the first few months. I’ve struggled with irritability, joint pain, and weight gain. After a year I started taking an anti-depressant which has helped but I’d like to stop taking all. I do worry about the cancer coming back and it being “my fault” because of quitting Tamoxifen. I’d love some more information!
Dear Sarah,
Info on its way!
Warmest regards,
Marnie
I stopped Tamoxifen almost 2 weeks ago and I feel so much better!! More like myself again. I would love more information! Thank you!
Dear Kristina,
Info on its way to you today. Check your email.
All the best,
Marnie
Thank you for this article! I have only been in Tamoxifen for 4 months and I have up and down extremes of energy. My dr told me to go off of it for two weeks to see if I can tell a difference. Is this long enough to see a real change! And I would love to have some ideas about more natural alternatives. Looking for any suggestions! Thanks! Tina
Hi Tina,
Sorry for the delay. I just sent you some information to your email address.
Warmest regards,
Marnie
I have been on tamoxifen for 5 years and will stop taking it at the end of the month. I was on arimidex for 5 years before that, so I have been on medication for 10 years since my treatment ended. Please send me any information that might benefit me from here going forward. Thank you so much.
Debbie,
Got some info coming your way today. Check your email.
Warmest regards,
Marnie
Hello, I’ve basically stopped Tamoxifen cold turkey after taking it for two years. But I do have the joint pain side effects that got worse after stopping it in some areas. I’ve found out that taking soy milk on a regular acts like what Tamoxifen does without side effects. I found this info from a breat cancer doctor that wrote a book her name is Dr. Kristi Funk. I sometimes struggle with the decision but I’ve been taking many other supplements and teas and trying to change my diet plus exercise to combat reoccurence. I haven’t spoken to my Oncologist about the decision although I’ll see her in August. I’m trusting God but it’s still a small thought of …..did I do the best thing.
Hi Belinda,
Yes – soy milk and other soy foods will be helpful due to their phytoestrogen content. Far from causing us problems phytoestrogens are actually protective. I love Dr Kristi Funk, I’m glad you are following her information. She will steer you in a good direction. As far as struggling with the decision, I can understand that, but having breast cancer is a multi-factorial thing – it’s not all about estrogen. There are many factors to consider when healing your body and if you need any help with that, I have an online course called Toxic Free Me that will teach you what to do to keep yourself in good health. Re your oncologist – she’ll get over it! You’ve done a good thing for yourself in my opinion.
Warmest regards,
Marnie
Hi Marnie, I have been on Tamoxifen for almost 2 years and have just come off it. I haven’t felt right since I started it. Please can you send me some information about alternatives. Many thanks Helen
Hi Helen,
It’s not quite as easy as “Tamoxifen alternatives” — healing from breast cancer involves so much more than blocking our estrogen. I have just sent you an email with lots more information.
Warmest regards,
Marnie
Hello! I just got a test done to my removed tumor and the test said I could stop after 7 years. I was also on gabapenten for my hot flashes. Cold Turkey off of T and weened off of G. Any thoughts? I am achy!!!
Hi Deborah,
Thanks for your patience with my response. If you’d like to email me directly I’d be happy to help you with any enquiries.
Warmest regards,
Marnie
I have been on Tamoxifen for 3 months. I admit I do not have all the side effects as stated other have reported. I do get night sweats, hot flashes and brain fog. My oncologist, Told me I was lucky to take this medication. 🤷♀️. I want to do it with a natural approach. Would love suggestions.
Hi Laurie,
I’m glad you aren’t having all of the side effects, that’s awesome. Some of them do come on after a lengthier time on the medication, so please be aware of that, especially any vision changes. As far as being “lucky” to take the medication, interesting comment from your oncologist. Wonder whether they’d take it themselves! At any rate, if you are looking for all the best tips and science-backed research into natural therapies for staying free of all of this, be sure to check out my course “Toxic Free Me” – I put this course together for exactly these reasons. https://marnieclark.com/how-to-courses-toxic-free-me-course/
Warmest regards,
Marnie
Marnie, I am a breast cancer survivor, can you please send me some info also for alternative.
I would greatly appreciate it. ❤️
Hi Carolynne,
Yes, no problem, will send it today.
Warmest regards,
Marnie
Hello Marnie, I would be interested in any information on post breast cancer tips. I have been suffering from horrendous cramps and will stop tamoxifen as I cannot go on like this. I have been having many of the other side effects (joint pain, hot flushes, sleep issues, weight gain…) but the cramps have had me howling.
Hello Marnie! I had a double mastectomy in October 2019, chemo until March 2020. Started tamoxifen in September of 2020 and stopped cold turkey on June 4th, 2021. I have never felt better, but like many other women sometimes wonder if I am making the right decision. I am trying to find a more natural way to fight the cancer from coming back and would love any information you can share with me. Thank you!
Hi Amber,
Thanks for your patience with my response. I’ve sent some info along to your email address you gave me.
Warmest regards,
Marnie
Hi Marnie, thank you for this article. I was recently diagnosed with stage 3 her2 positive breast cancer. I had a mastectomy but declined chemo and radiation. Instead I have altered my diet and reading all the books I can find on curing cancers naturally. The next stage of my treatment plan shoukd be tamoxifen for 5 years, which I will also be declining. Can you please recommend any natural alternatives? I am based in the Uk. Many thanks for your help in advance.
Hi Tina,
Thanks for your comment. I wish I could tell you that there was one particular thing you could take instead of tamoxifen, but what I have discovered is that there are a few things a person needs to do to stay well. I have your email address and will email you some information.
Warmest regards,
Marnie
Many thanks, and please keep up the fantastic work. Your website really helped me make informed decisions about my cancer treatment, decisions that I never thought I would be making at 33.
Kind regards
Hi Tina,
Thanks so much for your kind words. I appreciate that and I’m so glad to know that I have been of benefit to you. I wish you much health and healing.
Warmest wishes,
Marnie
Please send me your suggestions to Tina as well. I just stopped taking tamoxifine yesterday after 5 years, the side effects from taking it are worse than the benefits. I would like to learn more about natural ways to fight cancer reoccuring. Thank you for your time and God Bless you for your help to all these people. Theresa Lockhart
Hi Theresa,
Info coming your way!
All the best,
Marnie
Hi! Thx so much for your article. Can I please have the info as well. I just came off tamoxifen at 38 yrs of age after 1 year cause I can’t take it anymore:(
Please forward that info soo greatly appreciated.
Steph,
I’m sending info to you today.
Warmest regards,
Marnie
Hi, I am a 55 young and diagnosed with estrogen and progesterone positive diagnosed with invasive duct carcinoma in April of 2020. I was stage 1 did lumpectomy and radiation. I had a hysterectomy age 45 in 2012 do to fibroid and was left with my left ovary. Supposedly this one over is working like 3. I started Tamoxifen after radiation Nov 2020. I couldn’t do it with taking 20mg and started cutting them in half down to missing 2 weeks of taking now. My Onco came back low risk of reoccurannce and that it was a slow growing type of cancer. I am looking like I have aged with lines in my forehead, skin ruff, aching all the time and I was already doing cognitive therapy due to ptsd and depression which Tamoxifen did not agree with the antidepressants prescribed so I quit those too. I am forgetting alot and foggy mined at times. At this point I am done and would love any help with my journey in getting my body balanced again. Thanks and pray God blesses all you ladies by retoring and healing of the body.
Hi Twylite –
Thanks for sharing that with us. I’ve got some info coming to you today.
Warmest regards,
Marnie
Could you also email me with information regarding what I can do to help myself as I have also decided not to take tamoxifen. I have just stopped taking an aromatase hormone because I have been diagnosed with severe osteoporosis and it is very detrimental to the bones. I really don’t want to take tamoxifen but feel very worried by my decision.
Sarah,
It’s on the way!
Warmest wishes,
Marnie
Hi Marnie
I just stopped taking Tamoxifen I was on it for 5 years and then put on Letrozole I lasted 4 months and was so depressed. I told to stop and put back on Tamoifen for the last 7 months. I saw my Oncologist yesterday and told her I wanted to stop and she gave me her okay.
Could you email me the info on fighting it the natural way.
After 6 years I saw my doctor yesterday because of 3 small lumps in my breast. She is positive that it is nothing but sending me for an MRI.
Thank you for your article.
Patti,
Check your email. I have some info coming your way.
Warmest regards,
Marnie
Marnie,
I have also stopped the tamoxifen. It has been 4 months and I am finally starting to feel like my old self. I would also appreciate the info! I am starting to see a new oncologist next week. Looking forward to a healthy post cancer approach. Thanks for all you do!
Hi,
I also just stopped taking Tamoxifen. Any help would be greatly appreciated!
Hi I’ve been on tamoxifen for ten years didn’t get any side affects been off it now for one month and still no side affects so no problems on or if it and my bones are fine
Hi Amanda,
Well, it’s great to finally get a good report from someone who’s been on Tamoxifen for so long. You are one of the lucky few who had no problem with it. Thanks for sharing that, good to hear from you.
Warmest regards,
Marnie
I just had a lumpectomy for stage 1 breast cancer, clear lymph nodes. I take estradiol and have taken componded bio-identical hormones for years. I don’t believe they caused this breast cancer as I have cousins with the same dx who have never takrn them. I also have MCAS and am in the biggest flare of my life from surgery and stress. I have to make decisions about anti-estrogen meds and radiation next week. I react to medications poorly and taking tamoxifen will def send me into a MCAS flare that doctors do not understand. I do have concern for the cancer returning if I don’t. But I am almost 72 and cannot put myself in such poor quality of life during these years. I am also concerned how my body will react to radiation. But my family will definitely be upset if I don’t do it. Most oncologists have no clue about MCAS and how a flare can put someone into anaphylaxis. Could you send me tips on preventing cancer’s return using natural methods?
Hi Cheryl,
Thanks for sharing that with me. I can certainly understand your concerns about anti-estrogen meds, especially with MCAS. I am sending some info your way today.
Warmest regards,
Marnie
Dear marnie, hi.your findings are absolutely right. I took tamoxifen for five years, never missing aday, as I had thought this would keep the cancer away forever. I was wrong, it returned one and half year later. I was adviced to take it again the second time and I m so glad that I decided not to. I suffered so much joint pains and fatigue during and after tamoxifen. Thank u so much for your research.I wish I found u earlier.
Dear Tasneem,
Thanks for sharing that with me. I’m sorry to hear that you are in the category of women who have not had a good response with tamoxifen. I can’t believe they offered it to you again! It failed once already, what makes them think it will work the second time? Unbelievable. You made a good decision. If you need my help putting together a wellness program, please let me know. I would be glad to assist you.
Warmest regards,
Marnie
Hi marnie,
Thanks so much for ur reply.I just wanted to sharewith u , that I ‘ve been taking ground flaxseed and turmeric powder very regularly. I make a drink of hot milk with 2 tsp of ground flaxseed , quarter tsp of turmeric and apinch of black pepper, and have it once a day, usually in the morning. Its a very comforting drink and very beneficial too.turmeric had very good effects on my joint pains ,especially knee joint.flaxseed has been very good for hotflushes, and there are loads of other benefits.its nearly 2 years since I ‘ve been using them, so its tried and tested. And one other thing I use a lot is coconut. Fresh coconut water was very soothing during chemotherapy.
Tasneem,
Thanks for sharing that wonderful healing drink recipe with us. I hope you are using organic milk? Depending upon where you are in the world, this could be a very important thing. In some parts of the world, growth hormones and antibiotics are given to cattle and these get passed into their milk, putting us at a higher risk for breast cancer. So just be aware and be cautious of that. But your hot drink with flaxseed, turmeric and black pepper is wonderfully healing and will be doing you lots of good! Thanks for sharing it.
Warmest regards,
Marnie
Marnie,
Are these effects similar to withdrawing from Anastrozole? I’ve been on the drug for 2 1/2 years and am considering stopping. I’ve discussed this with my oncologist – he said it’s my decision.
I would appreciate any information you might offer to help with my decision. Thank you.
Hi Loraine!
Yes the effects of withdrawing from Anastrozole are similar to tamoxifen. It’s a difficult decision but I believe there are much better options that do not have the toxicity or side effects that these drugs carry. If I can help you with your wellness program moving forward, please do not hesitate to contact me.
Warmest regards,
Marnie
Thanks for the article! I am 5 years out from my chemotherapy and double mastectomy. I was instructed by 2 oncologists to take tamoxifen for “the rest of my life.” I’m 50 this year so that’s a lot of tamoxifen! My inquiries to stop fell on deaf ears so I took matters into my own hands and stopped the treatment. It was extremely difficult and my family struggled with my decision however reading your article has given me new confidence and hope. Thank you for sharing.
Dear Molly,
You are more than welcome and thanks for sharing that. It does take some courage to stop the drugs, and you do need to be proactive with your health. You might benefit from my free newsletter series – I have much to share within them on the best ways to keep healthy.
Warmest regards,
Marnie
Thank you so much for this post. I have recently stopped Tamoxifen after 4 years, mostly because, after years of severe nausea, insomnia, brain fog, pain, fatigue, loss of appetite, weight gain and a host of other side effects, I was told I would be taking it for 6 more years.
I had a 2mm DCIS stage 0 lump, no chemo, radiation only. Even the nurse practitioner felt that 10 years of Tamoxifen was excessive. I went off the meds for a month while I got an emergency hysterectomy because pre-cancer cells were found. Thanks, Tamoxifen. After four weeks off the med, I was clear headed again, and I felt so much better. I cried when I had to start taking it again.
I don’t want to wait 6 years for my quality of life to improve for minimal beneficial impact from this horrible medication. I can’t wait to hear my doctor scream when I see her next, but this is my life, not hers.
Hi Sassy,
Thanks for your comment! That list of side effects from the Tamoxifen is a long one, no one would blame you for not wanting to take it anymore. It does seem like overkill for DCIS stage 0, I agree. There are so many other things you can do to help yourself stay well, without those toxic side effects. Have you signed up for my free newsletters and e-books? They are full of my best information on healing from breast cancer and avoiding recurrences. You can sign up from any page on my site, if you haven’t already done so, here’s my page explaining: https://marnieclark.com/8-reasons-to-subscribe-to-my-newsletters/ I look forward to helping you again, just let me know how I can best assist you.
Warmest regards,
Marnie Clark
Hello Sassy,
I really can relate to your situation. I’m taking Tamo a 3/4 y. and it changed EVERYTHING to the worse. As you say: brain fog, weight gain (12 kg ), hot flushes and here: massive problems with my bones, eyes, etc. The list is so long! A few weeks ago pre-cancer cells where found in my breast too and that only after a few months I did the complete therapy (op, chemo, radiation, tamo, herceptin ..) I’m really tired of being (a) patient.
IYesterday was my first day without Tamo.
My oncologist and my gyn are going to scream too, but yeah, it’s my / our life.
Trying to determine what I may face after breast surgery and chemo. The pros and cons. This was my second cancer (colon cancer) was first seven years ago. I really don’t want to think of a third cancer. My breast cancer was stage 2. It was 2.2 cm. Any info will be appreciated. Thanks
Thank you for this article , it’s helping me understand what’s happening with my body physically as well as mentally.
What a fantastc and understanding woman you are Marnie. I am a good 80 and had breast cancer 8 years ago. Had been on hrt 20 years. No regrets.
But came off Tamoxifen as rec by oncologist without being warned of side effects. Frightful hot flashes to the point of passing out. Aching joints and having to lie down half the day. I was not given any direction this could happen. It has been disturbing for me and I am normally an active cheery person. There is no comfort. Do you or dont you take it.
I might add that the reason I stopped after 8 years was because while still taking Tamoxifen the flashes were becoming a problem.
Thanks for your thoughtful information
Helen,
I’m glad you found this article to be beneficial. Hopefully by now some of the side effects of withdrawal from the drug are easing. I do recommend all of the things I’ve mentioned here – not all at once, of course, but try a couple together and see if they help you. Any questions, let me know!
Warmest regards,
Marnie
Hello Marnie,
I’ve all these side effects and I’m going to stop it the way you recommend. Thank you for your support and fantastic research and information!
I don’t know where to ask this question (Tamoxifen side effects): Did you meet woman who had massive problems with their eyes? Since a few months I’m experiencing different ocular disturbances – even “floaters” and very bad nightsight (?).
Greetigs
E.
Hey E,
I’m from the UK and neither my doctor or my oncologist warned me about eye problems. When I was last at the opticians I was asked if I had any problems as Tamoxifen can cause issues with the eyes. I, like you experience very bad night vision and I also have floaters which were explained away as PVD (Posterior Viscose Detachment). My eyes are always sore and itchy and quite often my vision is blurry. Having read Marnie’s article and the posts re Tamoxifen I am seriously considering withdrawal. I have been taking it for four and a half years so I don’t reckon it would make much difference to cancer recurrence if I withdraw now.
I would be interested to hear if many others have experienced these problems.
Another serious side effect of my breast cancer treatment (radiotherapy and Tamoxifen) has been atrial fibrillation, pericardial effusion and ME/CFS. I felt fine when my tumour was discovered but I can honestly say that I have not felt well since the treatment started. Is it worth it?
IM
I just stopped seven days ago tamoxifen after 5 years taking it. I had DCIS stage 0 and the doctor recommended to take it as I had another area that they needed to evaluate closely after a biopsy. During the 5 years my eyes were affected, and my bones, some gain weight, lost my period, got hot flushes and fatty liver. My onc ordered a hormonal test and liver tests, and found out that I am now in early premenopause and that also she found again a slightly higher fatty liver. She never told me that i could get withdrawal side effects and today has been the worse day of the seven since I stopped taking it. I feel lots of nausea, stomach pain, lower back pain, weakness, dizzy, dry mouth, joint pain, and lots of fatigue. I just sent an email to my oncologist to talk about this. I am very concerned about these side effects, wondering for how long they will last and if i need to take something to feel better. They come and go, but today has been the worst.
Thanks,
Mariela
Eva,
I apologize for the delay in responding, I only just saw your comment. Yes, I have met other women who had loads of problems with visual disturbances whilst on Tamoxifen. The good thing is that once you quit taking it, all such problems generally ease off. There are plenty of natural supplements and foods you can take to help with your vision, goji berries and goji juice being one of the best! Hope this helps,
Marnie
Hi marine lve been taking tamoxifen for 5yrs and6 month they told me l had to take for 10 yrs but lm tired of this toxic in my body now I’ve stopped it and l have lot of side effect very low tired l guess it will get better l had grade one of cancer was lucky l had part of breast remove my nipple and had radio now I have to go to gynae as I had a bit of discharge l hope is nothing thanks for listening my story xx
thanks!
Trying to get off Tamoxifen after 4 1/2 years. Radiation from 30 years ago caused breast cancer. Had a double mastectomy. Now just want some energy and want to feel good. I’ve not had terrible side effects but my “gut” is telling me to get off of it. I drink lemon/ginger water every morning. Turmeric pills. Mistletoe injections. Cannabis oil. Vegetarian. No sugar in my diet. Exercise regularly. Taking pills to support my immune system. What else should I be doing? Thanks!
Th ankyou for your information.Ihave a problem though .I stopped taking Tamoxifen about 6 months ago.The side effects were bearable up until recently when I developed lower abdominal pain and started to bleed very heavily. I went to my gp and he prescribed something to stop the bleeding.But the pain is still very bad at times.I don’t really know what else to do.Any ideas?Thankyou from Liz x
Elizabeth,
I apologize for the lengthy delay in responding to you. I’m trying to catch up with all of the emails and messages I receive! Hopefully by now the abdominal pain has eased off and you are feeling better. I would not feel comfortable in recommending something to you without a detailed health history. Have you access to a naturopath in your area? I would recommend seeing one if this is still a problem for you.
Warmest regards,
Marnie Clark
Thank u so much for ur article. Can u advice me on what I should use to avoid recurrence. I had chamo, radiotherapy and I have been on tamoxifen for 5 yrs. my fear is when ever I tried to stop u would feel a lamp and if u take it again it disappears. Help me please.
Anna,
Yes I know exactly how you feel, I felt that way too, only I chose to get and stay healthy without the use of Tamoxifen. I would suggest becoming a subscriber to my newsletters and e-books, given freely to share with people the best ways to heal from breast cancer and keep away recurrences using natural medicine. I wish you well in your quest to be healthy and if I can assist you, please do let me know.
Warmest regards,
Marnie Clark
I took tamoxifen for 40 days and started having severe abdominal cramping so I stopped taking the poison. I went to my gym and she did an ultrasound and did a biopsy. She said I had slight thickening of endometrial lining. She will recheck me again in 3 months to do a comparison. When I told doctor I had quit taking it and why he said I don’t blame you since you were having those problems. Then he said my risk of developing breast cancer wasn’t that high anyway. That made me so mad. I wanted to say why did you put me on it. I had DCIS 3 cm scale 0
Hi Marnie
I went off the tamoxifen after 4-1/2 years. I couldnt wait because the side affects were horrible, and I have gained 30 LBs over 4 years. However, now my side affects are worse. It has been three months. I had stage zero/1 invasive cancer on both sides and a full masectomy. Along with all the side affects that are listed from other cancer patients, fatigue, flu like symptoms, serious joint pain, muscle aches, bloating and extreme weight gain, I am also having pain in my arm pits. It worsens during my cycle. I am only 45 and I feel 90. Do you think that this is a side affect? My primary doctor has requested an ultra sound of my arm pits. Can you give me some advice?
Thank you
Bridget
Hi Bridget,
Yes it frequently occurs that the side effects from Tamoxifen worsen when you stop taking it, especially if you’ve been on it for awhile. It normally doesn’t last much longer than 8-12 weeks, but everyone is different. I’m not sure about the pain in your armpits, I’ve never heard of this being a side effect. It is a good idea to have the ultrasound, get yourself checked out. It could be a lymphatic problem – did you have any lymph nodes removed?
Warmest regards,
Marnie
Hello I am having alot of side effects depression I took it for 5 year I stop 9/2016 now I going through the side effects long do they last…..
Hi Sapphira,
I’m sorry you are having so much trouble from the Tamoxifen side effects. How long they might last depends a lot on your system and how toxic your liver might be. You were on it for 5 years, so your body grew quite accustomed to it. Try some of the natural remedies listed on this page, they will help you through this stage. Wishing you much healing,
Marnie Clark
https://marnieclark.com
Hello, just found this site by acident so appologise if my question been asked before ladies. I have taken Tamoxifen for 4 1/2 years with tolerable aches and pains. After a spate of serious head aches,, suspecting it after tests to be a lunar infarct stroke, put me on Letrozole. These really enhanced my pains. Two months later after Ct and mri (and changed their minds that it wasnt a stroke) i went back on the Tamoxifen still aching. I have been off all meds of my own choice for a month and am so so confused as to what is the best option. Knowing now that doctors advise 10 years. Help! does anybody have any good views on taking no meds versus cancer return rates. thanks for reading look after yourselves .
Lydia,
Please check your email, I’ve just sent you a private response to this message.
Warmest regards,
Marnie Clark
https://marnieclark.com
So glad I found your site. I came off of Anasrozole after 5 year use. Personnaly, I feel it was of benefit to me. However, I wanted to know about withdrawal. Glad I researched and read all these comments. I usually have high energy level but since I went off meds, I feel as though I have a slight case of the flu, and tire more easily. This to will pass I hope. I am 88. Thank you for the enlightment.
Hi, really pleased to have found your website. I am trying to decide whether or not to come off tamoxofin two months earlier than the 2 years advised, because of side effects and wanting to take control over having children. My cancer was her2 positive and weakly eostrogen positive and my oncologist always said tamoxofin was a tiny part of my treatment. I get married in 2 1/2 months and wouldn’t want to gain weight or my emotions be all over the place- which is why I’m not sure about coming off it sooner than after the wedding. The reason I want to come off it now is vaginal atrophy which is somedays quite painful and also I can conceive sooner. (My life has been on hold for long enough!). Many thanks, Rosie
Hi Rosie!
I have just sent you an email with some information in it so check that when you get a minute.
Warmest wishes,
Marnie
Hi next yr i will have had been taking tamoxifen for 5yrs and i see stuff that say taking it a extra 5 yrs is much better. I have been very blessed to have NO bad signs that i know of. I am just very worried about what is the best choice should i take the extra 5 or go off and hope for best.
Hi Eva,
That’s a great question. I’ve sent you some info via email today so look for that.
Warmest regards,
Marnie
Hi Marnie
I have just had my annual review of medication with the Onc.
I have been on Tamoxifen for 5 years with some side effects but not awful like some people who have commented here. Ihad a hysteroscopy to check the lining of my womb about a month ago and that knocked me sideways. Had a uti for which I had antibiotics followed by thrush. The thrush went but 2 weeks later it is back.
The Onc has given me the choice of coming off the meds altogether, staying on Tamoxifen for another 5 years or going on to Letrozole for 5 years. He has left the decision to me. He gave me some statistics about the percentages of life expectancy but now I don’t know what to do. I would love to come off but am scared of that too because of the side effects. Help !!!
Hi Beverly,
I have just sent you some info via email.
Warmest regards,
Marnie
So glad I found this sight quite by accident. I just stopped tamoxifen after being on for almost five years. I have had eye problems during my time on this drug. I had two retinal tears and now have dry eye. I am also having unbareable vaginal dryness just about as bad as when I began tamoxifen. Thank you for your help.
Deborah,
I hope the remedies mentioned on this page have been proving helpful to you. Thanks for sharing your side effects, so sorry you went through all of that. One day perhaps we’ll get targeted therapies instead of toxic drugs.
Warmest regards,
Marnie Clark
Have just stopped taking tamoxifen after 7.5 years. Can you give me any advice on how I can keep counter the side effects. Thankyou
Hi Rachel,
The suggestions in this article will all help you with some of the side effects from going off this drug. In addition, you might like to sign up for my newsletters (the sign-up form is over on the far right-hand side of this page) to help you learn how to stay well and reduce risk of recurrence.
Warmest regards,
Marnie
Great read and article. Thank you so much for sharing. And Marnie, this is so informative.
I’m 2 weeks post stopping tamoxifen after nearly 2 years. My onc is not happy. I had triple positive, her 2, fec-t, trastuzumab and pertruzumab, double mastectomy. Tamoxifen side effects have been hideous-flushes, bone pains, cramps, visual problems, tiredness. I wear acupuncture studs to try and combat some of these symptoms. I have terrible thirsts. I suffer with peripheral neuropathy and take duloxetine, another drug I’m trying to stop. The withdrawal from this is far worse though so I’ve had to start the duloxetine again.
Keep on keeping on I guess….
Hi there –
Not at all surprised to hear about your side effects, just sorry you had to go through them! I’m sending some info via email to you today.
Warmest regards,
Marnie
Thank you so much for sharing this and replying to me personally. It’s reassuring to know I’m not the only one feeling like this.
I have only been on Tamoxifen for 3 1/2 months and I have broke out with hives. They officially took me off it yesterday. It gave me headaches, liver pain, joint stiffness, blurred vision, dry mouth, etc. I was getting all of the less common side effects.
Any additional suggestions to detox and heal my hives?
Hi Kelly,
Oooh. Hives! Not nice! I’m sorry for you. It does sound like the side effects from Tamoxifen are seriously messing with you. I strongly recommend everything I’ve suggested in this article, and for extra detox tips, see this article: https://marnieclark.com/how-to-detox-your-body-after-chemotherapy-and-radiation/ Hope you feel better soon.
Warmest regards,
Marnie
Hi Marnie, glad to chance upon ur pg. I had mastectomy earlier in the year. Stage 2 bc. Opted against chemo cos my husband said that’s poison. That’s when i started to do some research on cancer n treatments. So glad i didn’t do chemo. But went on to take tamoxifen cos the docs insisted i needed the ‘extra’ insurance against recurrence. I’m 41. 6 mths aft tamox i went for a hysterectomy cos my fibroids were growing out of control. Shd be due to tamox. I’m seriously considering stopping tamox esp aft reading what you hv shared. Really appreciate the info.
Regards,
LC
Hi LC,
Goodness. I’m sorry to hear of your problems with Tamoxifen. The fibroids are more than likely attributable to the Tamoxifen. I don’t blame you for not wanting to take it anymore – especially when there are so many other things you can do – non-toxic therapies – to help yourself keep well. If I can assist you, please let me know.
All the best,
Marnie Clark
I have been taking Tamoxifen for 5 years. My oncologist originally prescribed this for me for 5 years. Then about a year ago she told me that staying on it for an additional 5 years would be more beneficial. My breast cancer was stage 1 IDC and I had a lumpectomy and 4 sentinel lymph nodes removed. I had a few cancer cells in one lymph node. My Oncotype DX test results showed that I would not need chemo, but I had radiation to eradicate any cancer cells in my breast.
I am now considering stopping the Tamoxifen. I would love to receive the information you have for the natural alternatives that will help to prevent the cancer from recurring. I’m ready to be free from the side effects and to have a better quality of life moving forward. Thanks!
Hi Pam,
Thanks for your message. I’m sending out an email to you shortly.
Warmest regards,
Marnie
I have a lot of weight gain and bad hot flushes and I can’t sleep
Hi Margaret,
Indeed, these are just some of the side effects from Tamoxifen. Are you needing help with these?
Warmest regards,
Marnie
Hi Marnie!
Could yo please send me information regarding he natural therapies you suggest?
Thank you!!
Hi Jessie,
Are you talking about natural therapies for Tamoxifen withdrawal side effects? Or? Let me know.
Warmest Regards,
Marnie
Does the joint pain in knees, toes, fingers go away??! After 5 long years
Been off Tamx. Almost 6 months still not back to myself in any way
Eye sight changed too.😂
Char,
That’s rough! Have you tried any of the remedies listed in this article? I do know it takes awhile for the body to remove the toxicity of the drug for some people and natural therapies definitely help this. I would recommend starting a juicing regimen, and you might find acupuncture helpful as well. Give these things a try.
Warmest regards,
Marnie
Hi Marni
Ive been on Tamoxifen for 7 years. I have developed terrible joint problems, esp hips and knees. my Dexa scan is showing osteopenia and i havre bad wear and tear on the cartilage on both knees. My Gp says this is normal for my age. I am 52. I don’t think I should have these problems at 52. I also cry every day, some days are worse than others, sometimes I just cry for no reason at all. I dwell on sad news, can’t seem to help it. I have gained 40lbs.. I am coming off the tamox I can’t bear living like this.. Ive been diagnosed with fibre and CFS but don’t take the meds for this as I feel Im adding to side effects. Ive been prescribed cymbalta but stopped after 3 months as they nearly drove me mad. I would really appreciate some advice
Thanks
Alice
forgot to mention, I do appreciate that some of the problems we have on tamoxifen are age related, but not to this extent…. ie the vision problems, I put this down to my age and some of the stiffness, but not to the degree I have
Thanks
Alice,
I’ve just emailed you some info – sorry for the late response.
Warmest regards,
Marnie Clark
I would like the natural remedies for fighting breast cancer in place of Tamoxifen please.
I found all the these comments relatable in one way or another.
I started Tamoxifen Jan 2018, had all side effects in the 1st 3 weeks including cramping & clotting.
I am still clotting and had a period of some sort this entire year so far (today is Feb 21st) My Oncologist has just taken me off until I have a trans-vaginal ultrasound to make sure my uterine walls are not thickening leading to Uterine cancer… a side effect of this medicine. Depending on those results and my GYN recommendation she suggest going back on Tamoxifen if Gyn agrees my “walls” are okay, if not she wants to force me into menopause with monthly shots & daily pills again until…..
I’m only 51 that would be at least 10-15 years?
I’m thankful I stumbled onto this page – I don’t feel so alone trying to make this impossible decision.
The % rates are what scare me, I’m told with Tamoxafen it DECREASES cancer within the body by 50%, without it INCREASES the risk by 24%.
How are we to make such a decision?
Thank you ladies for sharing,
-Patty
Hi Patty,
Info coming your way today.
Regards,
Marnie
I started Tamoxifen 5 months ago and the side effects are horrendous – hot flashes, emotional, insomnia, always tired, bloated, joints sore, pelvic pain, nausea, diarrhea, stomach cramps, hectic pressure headaches, head just does not feel clear, lack of concentration, change in eye sight, tingles in body, muscle cramps. I havve decided to stop it – not told my Dr yet – you mention above some guidelines for a diet. Would love to find out more.
Hi Marnie great article. I knew about SE of Tamoxifen 6 years ago when wife started taking it but she decided to stay with it even though she was in terrible pain, but lately the musculoskeletal pain has really escalated to the point she is certain the C has returned. I try to reassure her but reading your article I too am starting to worry. Please note we only eat organic now and lead a healthy lifestyle and supplement where necessary but just can’t keep the horrible SE at bay. With hindsight I would of giving my wife a natural product such as ‘ Dimm’ instead of tamoxifen. Marnie can you ps send me info on anything to combat the SE and anything else to stop further mets. Thank you.
Steve,
Sorry for the delay. I’ve emailed you some information today.
Best regards,
Marnie
Hi Marnie, I was advised by my oncologist to stay in tamoxafin for 10 years which I just finished in September. Initially, my Doctor had always spoke of tamaxofin being a 5 yr therapy. When I went for my 5 yr visit, he stated that a new study was performed and they recommend it for 10 yrs. Since I had no symptoms of any side affects being on it I agreed to continue it thinking it would protect me more. My gynecologist told me that it was beneficial for my bones also. I found your site because I haven’t been feeling well and I googled side affects from going off of tamoxifen. It is very scary reading all of these testamonials. You put your trust in your doctors. It is very hard to know what is the best thing to do. Found lumps in my neck, praying it’s nothing. I will sign up for your emails. Thank you for your information. God Bless.
About 5 1/2 years ago, I had an incidental finding of lobular hypoplasia during a biopsy. Having no other factors for breast cancer risk, this was enough to put me in the “high risk” category. I even brought my adult sister to the appointment to take notes while it was explained to me that tamoxifen was “insurance” against developing breast cancer and that women rarely had side effects. This was age 42. I took it 6 months and ended up in the ER because no doctor would believe that tamoxifen was causing all these horrible side effects-nausea, hot flashes and night sweats, horrible leg cramping, and the worst insomnia. I barely slept for 6 months. I lost 20 pounds in a month. They did prescribe additional medications to counteract my symptoms, such as SSRIs which we found out I cannot tolerate. My anxiety grew until I found myself nearly suicidal. I finally made a decision (not recommended) to go cold turkey on everything and ended up in the ER as I could not stop crying for 2 days. Last year I was finally tested for estrogen and progesterone levels and they were zero. So, tamoxifen taken for 6 months has had long lasting effects on me, a person who has never had cancer, even now. I still have horrible insomnia. I am taking estrogen and progesterone which magically made my “psychiatric” symptoms go away, although I look at each day and try to do the bare minimum to get by. I have no energy, no interests besides being there for my family, and spend a lot of time gauging if my kids can tell how anxious I am. I used to be fun and energetic and tamoxifen has literally ruined my life. I have decided to try changing to a new health care system and new doctor and try to drop all the specialists. My current solution is Klonopin for sleep and estrogen patches and progesterone orally. Thank you for your article and all the suggestions for improving our health.
Dear Karen,
Wow – what a story! Thanks for sharing it with me and my readers. I’m sorry you had to go through all of that. I don’t know where you are in the world, but I would recommend going to see a Functional Medicine doctor to help you bring back your pizzazz. I’m sure it’s still in there somewhere! Most major cities have Functional Medicine doctors – they delve much more deeply than conventional doctors will to see what is causing your current problems and what to do about it. Highly recommended. Wishing you all the best in your journey back to healing.
Warmest regards,
Marnie Clark
My sister had breast cancer, chemo, radiation and then 10 years of tamoxifen. It has train wrecked her body and disposition. She is angry, hurting, aching and completely fatigued. She stops the tamoxifen next month. How in the world do I help her? She doesn’t even get she is an angry little tornado which makes it insanely difficult to make any suggestions. Just wait it out? How long before the symptoms subside on their own if she won’t take suggestions?
Hi Laura,
Thanks for your message and for caring so much about your sister’s health. I’ve often heard that Tamoxifen changes a person’s demeanour, and how long it takes for your sister to get back to her old self is anyone’s guess, especially after 10 years of taking it! If you can, gently guide her to this page, something in this list is bound to help her. Sending both of you love, and wishing you all the best.
Warmest regards,
Marnie
Tamoxifen is AWFUL! I stopped taking it after 2-1/2 years, due to joint and bone pain so severe that one evening I was not able to stand up on my own. I had already gone through menopause 8 years ago and chose Tamoxifen as I felt it had fewer side effects then other AI’s.
I was diagnosed stage 1- ER Positive, PR Positive, HER-2 Negative , invasive DCIS underwent Chemo, Radiation and Tam. I have been off of it for 1-1/2 years. To this day, I still experience muscle cramping in my feet and hands, joint pain and the weight gain I have always watched my calories and worked out daily, nothing I do budges the scale. I am so frustrated that this has still not gone away. I have had a bone scan, bone density test and BRACA test all came back perfect. What this drug has done to my body and the lack of information out there about what it does is infuriating! While I understand that the drug has been “out of my body” long ago, it is the continued side effects my doctor cannot give me good information about. I am told, it is my age..not an answer I am willing to accept, I had none of these issues prior to starting Tamoxifen. I would appreciate any suggestions. I take Potassium and Magnesium for the muscle cramping which seems to help, work out, an hour and a half every day and eat under 1000 calories. I miss my old self.
Teri,
I feel for you! I have had many say something similar after being on Tamoxifen. You are obviously one of those who do not metabolize the drug well. As to the lingering side effects, lack of estrogen is probably the answer, even though you stopped taking it 1-1/2 yrs ago. Your body is still estrogen-deficient. I will email you some info.
Warmest regards,
Marnie
I’ve been on tamoxifen for several months. I can’t handle the side affects, and I want to stop. It’s too hard to function on a daily basis between the fatigue and joint aches. I was wondering if you could send me some natural remedies.
Hi Patricia,
I can certainly sympathize with you! What to do instead is a huge subject and not easily answered, so that’s why I created my “Toxic Free Me” how-to course. Here’s the link to find out more information about it: https://marnieclark.com/how-to-courses-toxic-free-me-course/ You can also sign up for my free newsletters, which have recently been updated with the latest research. If you have any questions, don’t hesitate to contact me.
Warmest regards,
Marnie
Hi Marnie,
My beautiful wife Sandy was diagnosed with stage 2 breast cancer 3 years ago. Since then she has been taking Tomoxifen plus IV treatments every 6 months. I presume to help keep her bones strong. She has never once complained about any side effects, but I get certain signals from her that tells me otherwise–like hot flashes. I found a liquid herbal formula online called, “Balanced Femme”. It seems to help but not every time. Every little bit helps right? So, when she had surgery for the breast cancer they also removed one lymph node. Because of that she has developed lymphedema in her left arm and hand and we are working through that situation. I am told it’s going to be a life-long problem for her. I have also noticed that her energy isn’t what it used to be and dizziness seems to be an issue. My concern is the Tomoxifen (how much longer) and what more can I do for her about the fatigue and dizziness as well as Lymphedema therapy. Sorry for the long comment. I just want my wife back.
John,
Oh dear – I can just hear the love in your words. I am sure you do want your wife back. I’ve emailed you with more information today.
Warmest regards,
Marnie
Hi Marnie,
I have been on Tamoxifen for 10 years and in my last week of taking meds! Yay me! Even though I stop having a cycle since my first chemo 10 years ago, what should I expect getting off Tamoxifen. My side effects from Tamoxifen was very low and I never had hot flashes.
Thanks!
Hi Sharon,
Wow – you made it the whole 10 years. Astonishing. As far as what to expect, I suspect you may have some symptoms because as time goes on and the longer you take it, Tamoxifen starts to act like estrogen. So you may very well experience some hot flashes, etc. If I can help you with any of that, do let me know.
Warmest regards,
Marnie
Hello Marnie,
My name is Sharon but my friends call me Sherri.
I am a 3x cancer survivor. Breast cancer being my first. Diagnosed in 2012 followed by 2 surgeries to remove the cancer within the margins.
Afterwards I had36 rounds of radiation.
I’ve been on Tamoxifen for 7 1/2 years and was taken off of it just last week by my oncologist.
I honestly didn’t feel much side affects on it except my sex drive disappeared. Will that return?
Also, I was told that there are no side effects detoxing from Tamoxifen.
I’m feeling irritable at times since. Is this a side effect?
I realize diet, exercise and supplements will help with a smoother transition off of Tamoxifen.
I found that flaxseed oil helps with hot flashes and chamomile tea soothe my nerves.
Is there any other information you can share with me in regard to life after tTamoxifen?
I’ve enjoyed reading the questions and your input.
Sincerely, Sherri
Hi Sherri,
I’m glad you haven’t had the problems with Tamoxifen that so many do. Yes, being irritable can be a side effect of withdrawing from Tamoxifen because, as the article says, after a lengthy time on it, it begins to act like estrogen and estrogen has many interactions with brain tissue and the nervous system. Yes, flaxseed and chamomile can be very beneficial. With regard to life after Tamoxifen, I have an entire online course full of information to help you reduce your risk of recurrence and stay well. It’s called Toxic Free Me, and you can enrol in it here: https://marnieclark.com/how-to-courses-toxic-free-me-course/ Are you also receiving my newsletters? They are full of my latest information on the things you can do to help yourself stay well. I wish you the best and look forward to hearing from you.
Warmest regards,
Marnie
2014 Stage 1 BC, lumpectomy with lymph nodes, chemo and radiation due to OncType number. After chemo I took Tamoxifen for a year, switched to Arimidex for 2 years but that caused way too much pain and switched back to Tamoxifen. I finished 12/2019 with the medicine but could not believe how my body ached. I got a new mattress, I was taking pain meds and still not better. Started retaking Life Vantage NRF1 and NRF2 – pain is much better but find when I exercise I can fall into pain cycle. Lots of weight gain (30 pounds in last year). Hoping to find answers – just don’t know how to eat correctly. Not a very good cook either. Any suggestions for supplements that could help?
Hi Rita,
Thanks for sharing that with me, I appreciate your trust. So supplements can definitely be beneficial for you (and you’re on some good ones with the Life Vantage), but they are only part of the story for helping to keep recurrences away. I find it’s a blend of things that help us the most – what foods, what exercise, even what mindset because you can be doing all sorts of great things for yourself physically but if you are not attending to the mental/emotional part of your health, you can be undermining everything else you do. I’d recommend either enrolling for my course, Toxic Free Me: https://marnieclark.com/how-to-courses-toxic-free-me-course/ or having some one-on-one coaching with me. In a single session with me, we can cover a lot of ground, and I can tailor make a healing plan for you. More info here: https://marnieclark.com/coaching-services/ I hope that helps.
Warmest regards,
Marnie
I’ve been on Tamoxifen for 6 years. I’d like to go off of it. I think 6 years is enough even though it’s been recommended to me for 10 years. I’ve had a lumpectomy, 16 rounds of chemo and radiation. Two biggest issues from this drug is hot flashes and mood swings. I suspect the drug may be making my moods difficult in day to day relationships. I’ve been on it so long, I don’t remember what my moods used to be like. I’d like information on tapering and alternatives to try while tapering off the medication. Thank you!!
Hi Christine,
Thanks for sharing all of that with me. I can so relate to what you said about not remembering what your moods used to be like – brain fog is another of the side effects of Tamoxifen! I’ve just sent you some information which I hope will help you today. Sending blessings.
Warmest regards,
Marnie
Hi,
I’m writing on behalf of my friend. She’s recently come off temoxifen after 10 years of taking it and is struggling with withdrawal symptoms, mostly with her mental health. I was surprised about the lack of information online about withdrawal symptoms so was really happy to find this feed. Was just wondering if you recommended any other supplements to help with the withdrawal symptoms? She exercises regularly, leads a very active lifestyle and eats well but is really struggling at the moment. Thank you so much.
Hi there Mils,
I appreciate your message and your wanting to help your friend. I wouldn’t feel comfortable recommending supplements to someone without knowing much more about them – the food intake, other supplements, prescription medications – all of these are important and what works for one person may not work for another. Please let your friend know that I am currently doing nutritional consultations and would be happy to help her. My consultations are described here: https://marnieclark.com/coaching-services The silver package is the one I’d recommend for her, and it is described pretty succinctly on that page. Thanks for looking out for your friend, she’s lucky to have you.
Warmest regards,
Marnie
Hi Marnie, Thank you for your articles on natural alternatives to drugs. I have Stage 1A BC, no lymph node involvement, Oncotype DX score 8, treated with lumpectomy followed by 16 sessions of hypo-fractionated whole breast radiation. I started tamoxifen four months ago rather than an AI after surgery due to osteopenia. This drug has caused all sorts of SEs that make me feel terrible, especially knee pain, cramps, breast pain, and fatigue. I am a very young and active 71 yo and can’t tolerate 5 years of this drug. Life is too short at this age, so I am taking a break if not stopping for good. I know my oncologist will not support my decision, so I am looking for information on my own. I listen to health podcasts and just subscribed to your site. I look forward to reading your information. There has to be a better way than toxic estrogen blocking drugs!
Dear Pam,
I so understand and sympathize. Quality of life is important after a breast cancer diagnosis, and you don’t need to live with those side effects for 5 years! I’ll send a little more info your way. I’m glad you reached out.
Warmest regards,
Marnie
I was diagnosed with breast cancer 18 months ago. Before and after surgery I was on letrozole, but the bone pain grew worse and worse, amplifying spinal arthritis to where moving was painful. I stopped the drug. My onc wanted me to try another AI, but I refused. So she said, try tamoxifen. Side effects were sweats, chills, but, surprisingly, elevated joyous mood, clear brain. Onc said she’d never heard that happening. Five months later, my liver enzymes began climbing and week-over-week went up, up, up. Fought my onc on this (she said it was unlikely the tamoxifen). After the 3rd blood draw she said to stop, so I did. My withdrawal was sudden and weird: overbearing sadness, deep depression, fuzzy brain, suicidal thoughts. Doctor says she’s never heard of that happening. Now she wants me to try another AI. No more. I am using herbal solutions with daytime doses of melatonin and DIM, and am curious if anyone has tried BreastDefend. I’ve read a slew of NIH papers that extol it.
Hi Michele,
Thanks for sharing that with us. Yes, lots of my clients are taking BreastDefend, it’s a good supplement. What I found works really well for keeping yourself healthy, however, is not just taking one or two supplements – it’s a blend of things. Exercise, good nutrition, looking after emotional health (especially that!) – I teach all about what things make the biggest difference in my course Toxic Free Me – here’s the link: https://marnieclark.com/how-to-courses-toxic-free-me-course/ The modules in the course are time-tested, backed by research and good for you! I hope this helps you today.
Warmest regards,
Marnie
Dear Marnie:
I feel that same as everyone above this message. I’ve been on Tamoxifen for a few months and want to get off it so bad and use a natural alternative is there is one. This detriment and treatment aged me.
Lucinda
Sorry….IF there is one.